| Records |
| Author |
Hammond, S. |
| Title |
Parallel journeys: Perceptions of palliative care |
Type |
|
| Year |
2001 |
Publication |
|
Abbreviated Journal  |
ResearchArchive@Victoria |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Policy; Geriatric nursing |
| Abstract |
The delivery of palliative care within contemporary New Zealand society is discussed, in the light of the recent publication of The New Zealand Palliative Care Strategy (2001). The viewpoint taken is largely descriptive rather than prescriptive, being based on a literature survey of international research and academic theory, which is also informed by the author's professionally gained knowledge. Four different perspectives, comprising a mix of providers and recipients of care are investigated: those of central government planning; specialist palliative care units; aged-care complexes; and patients, family and whanau. As an area of healthcare which current demographic projections indicate will become increasingly significant, the provision of palliative care to residents of and patients within aged-care complexes receives special attention. A metaphor of “parallel travellers” on “parallel journeys” is used to provide a thematic basis to the paper. The lived experiences and perceptions of each group of “parallel travellers” are explored. Difficulties in defining and evaluating palliative care, the implications of main-streaming, the scope of palliative care provision, the educative role of specialist palliative care providers and the current focus on mechanistic outcome measures are discussed. It is contended that the values and goals, both explicit and implicit, of the four specified groups may not at present be sufficiently congruent to optimise the effective provision of palliative care from the point of view of all concerned. While adequate resourcing and a genuinely collaborative approach among healthcare providers are both acknowledged to be critical, the potential for palliative care nurse practitioners to be appointed to the role of “care co-ordinator” alluded to within The New Zealand Palliative Care Strategy (2001), is also seen as pivotal. Insights from a postmodern perspective are offered as one possible way of achieving greater congruence. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1215 |
| Permanent link to this record |
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| Author |
Latta, L. |
| Title |
Exploring the impact of palliative care education for care assistants employed in residential aged care facilities in Otago, New Zealand |
Type |
|
| Year |
2007 |
Publication |
|
Abbreviated Journal |
Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Rest homes; Training; Older people |
| Abstract |
Palliative care is a growing specialty in New Zealand with many well-established hospices and palliative care services around the country. However palliative care is not confined to specialist units and is in fact an element of all health services. The aged care sector is one of those services where patients with palliative care needs are prevalent and this is now beginning to be recognised. In these settings care assistants, most of whom have no training, make up a large component of the workforce providing care for residents with increasingly complex needs. In 2005, Hospice New Zealand responded to the recommendations made by the New Zealand Palliative Care Strategy (Ministry of Health, 2001) by developing an eight-hour palliative care course for care assistants employed in residential aged care facilities. The main objective of the course was to increase care assistants' ability to deliver a high standard of palliative care to their residents within their scope of practice.This qualitative study uses descriptive, semi-structured interviews to explore the impact that attending the course had on care assistants and their practice by inviting them to share stories of their experiences caring for dying residents. Factors influencing the implementation of learning in the workplace were identified. The results showed that while attending the course had a positive impact on participants, they were restricted in the extent to which they were able to apply new learning in the workplace, which was largely due to factors that were out of their control. As a result, recommendations are made to enhance workforce development in the aged care sector and to minimise the barriers to the implementation of learning. |
| Call Number |
NRSNZNO @ research @ |
Serial |
812 |
| Permanent link to this record |
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| Author |
Johnson, S. |
| Title |
Hope in terminal illness |
Type |
|
| Year |
2007 |
Publication |
|
Abbreviated Journal |
Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Terminal care; Psychology |
| Abstract |
Hope is considered an elusive, vague, over-used, and ambiguous concept in nursing practice which lacks clarity, but hope is essential to the quality of life in the terminally ill. Therefore, hope is an important concept to research further. A gap in nursing research has been identified in the area of hope in terminal illness. The aims of this research were to clarify the concept of hope as perceived by patients with a terminal illness; to develop hope as an evidence-based nursing concept; and to contribute new knowledge and insights about hope to the relatively new field of palliative care. Utilising Rodgers' (2000b) evolutionary concept analysis methodology and thematic content analysis, 17 pieces of research-based literature on hope as perceived by adult patients with any terminal illness pathology (from the disciplines of nursing and medicine) have been reviewed and analysed. Hope's attributes, antecedents, consequences, social-cultural variations, temporal variations, surrogate terms, and related concepts have been considered. An exemplary case of the concept in action is presented along with the evolution of the concept hope in terminal illness. Ten essential attributes of the concept were identified in this research: positive expectation, personal qualities, spirituality, goals, comfort, help / caring, interpersonal relationships, control, legacy, and life review. The evolution of hope in terminal illness has evolved from patients hoping for a prosperous healthy future to an enrichment of being is more important than having or doing. Patients' hopes and goals are scaled down and refocused in order to live in the present and enjoy the time they have left with loved ones. Hope in the terminal phase of one's illness is orientated in the past and the present, hope in the here and hope in the now. The author concludes that by completing all the steps to Rodgers' (2000b) evolutionary view of concept analysis, a working definition and clarification of the concept in its current use has been achieved, providing a solid conceptual foundation for further study. Recommendations are made for hope-enhansing strategies, that may help to maximise the quality of life of terminally ill patients in the future. |
| Call Number |
NRSNZNO @ research @ |
Serial |
922 |
| Permanent link to this record |
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| Author |
Campbell, K. |
| Title |
Experiences of rural women who have cared for their terminally ill partners |
Type |
Book Chapter |
| Year |
2008 |
Publication |
Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) |
Abbreviated Journal |
Ministry of Health publications page |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing |
| Abstract |
This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role. |
| Call Number |
NRSNZNO @ research @ 776 |
Serial |
760 |
| Permanent link to this record |
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| Author |
White, G.E.; Su, H.-R. |
| Title |
Am I dying, nurse? |
Type |
Journal Article |
| Year |
2000 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
|
| Volume |
15 |
Issue |
1 |
Pages |
33-40 |
| Keywords |
Communication; Ethics; Nursing; Palliative care |
| Abstract |
This paper addresses the concept of truth, and debates who should tell it and how it should be told. It explores the cultural aspects of knowing the truth about dying. The question of whether nurses have a moral obligation to tell the truth is explored, and suggests the lack of New Zealand research in this area should be addressed. |
| Call Number |
NRSNZNO @ research @ |
Serial |
631 |
| Permanent link to this record |
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| Author |
Latta, L. |
| Title |
Reflective storytelling to enhance learning from practice experience |
Type |
Book Chapter |
| Year |
2005 |
Publication |
J. McDrury (Ed.), Nursing matters: A reader for teaching and learning in the clinical setting (pp.67-82). |
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Terminal care; Palliative care; Teaching methods; Nursing |
| Abstract |
The author looks at the value of using reflective storytelling as a teaching/learning tool in the hospice setting and examines constructs that provide a theoretical underpinning. She also outlines processes that support the implementation of storytelling practice and the creation of a safe space for storytelling. At the end of the chapter, discussion questions are provided by Janice McDrury. |
| Call Number |
NRSNZNO @ research @ |
Serial |
767 |
| Permanent link to this record |
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| Author |
Carter, H.; McKinlay, E.M.; Scott, I.; Wise, D.; MacLeod, R. |
| Title |
Impact of a hospital palliative care service: Perspective of the hospital staff |
Type |
Journal Article |
| Year |
2002 |
Publication |
JBI Reports |
Abbreviated Journal |
|
| Volume |
18 |
Issue |
3 |
Pages |
160-167 |
| Keywords |
Palliative care; Hospitals; Attitude of health personnel; Cancer |
| Abstract |
The first New Zealand hospital palliative care support service was established in 1985. Different service models have now been adopted by various major hospitals. In 1998, a palliative care service, funded by Mary Potter Hospice, was piloted at Wellington Public Hospital. Twelve months post-implementation, the hospital staff's views of the service were evaluated. It was found that referrals to palliative care from hospital specialities outside the Cancer Centre increased. While most doctors, nurses and social workers strongly agreed or agreed that the service positively influenced patients' care and effectively addressed their symptom management needs, spiritual needs were less often met. Over 90 percent of each discipline strongly agreed or agreed that the service had assisted them in caring for patients, but, only about a half agreed that useful discharge planning advice and staff support was provided. Significant differences in responses were found between different disciplines and specialities. One fifth of the staff identified palliative care education needs. Recommendations are made concerning the development of a future hospital palliative care service. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1075 |
| Permanent link to this record |
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| Author |
Norton, V. |
| Title |
Don't wait until we are struggling: what patients and family caregivers tell us about using a syringe driver |
Type |
Journal Article |
| Year |
2014 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
|
| Volume |
5 |
Issue |
1 |
Pages |
12-16 |
| Keywords |
Patients and family caregiver; Syringe driver; Palliative care; Symptom management |
| Abstract |
Undertakes a study to ascertain the experiences, perceptions and assumptions of patients and their family caregiver(s) about the use of a syringe driver in palliative care. Enrols hospice cancer patients who use syringe drivers to provide continuous delivery of drugs. Conducts interviews with 27 individuals: 12 patient/family caregiver pairs, and 3 caregivers. Uses thematic analysis to apply codes to data to reveal shared versus unique experiences. |
| Call Number |
NZNO @ research @ |
Serial |
1399 |
| Permanent link to this record |
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| Author |
Smit, Charmaine |
| Title |
Making self-care a priority |
Type |
Journal Article |
| Year |
2017 |
Publication |
Whitireia Nursing and Health Journal |
Abbreviated Journal |
|
| Volume |
|
Issue |
24 |
Pages |
29-35 |
| Keywords |
Self-care; Compassion fatigue; Burn-out; Compassion; Palliative care |
| Abstract |
Highlights the importance of prioritising self-care for palliative care nurses whose prolonged exposure to work-related stress may result in burn-out. Recommends a self-care plan that addresses individual strengths and challenges, including physical, emotional, cognitive, relational and spiritual. Suggests the use of self-care strategies, such as the identification of professional and personal strengths, and the application of mindfulness and stress-reduction techniques to improve self-awareness. |
| Call Number |
NZNO @ research @ |
Serial |
1548 |
| Permanent link to this record |
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| Author |
Rodgers, Vivien; Marshall, Bridget; Hey, Frances; Blackwell, Anna; Lewer, Pip |
| Title |
Readiness for providing primary palliative care |
Type |
Journal Article |
| Year |
2017 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
|
| Volume |
33 |
Issue |
3 |
Pages |
P. 31-40 |
| Keywords |
Primary palliative care; Aged residential care; SEQUAL |
| Abstract |
Undertakes a pilot study by specialist Supportive Education and Quality (SEQUAL) palliative care team in 5 aged residential care (ARC) facilities in regional NZ. Conducts a clinical staff survey and facility desktop document review to determine readiness, need for and level of support required, to enhance primary palliative care for residents. Identifies lack of experience and palliative care education among clinical staff. |
| Call Number |
NZNO @ research @ |
Serial |
1589 |
| Permanent link to this record |
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| Author |
McCormick, Glen; Thompson, Sean R |
| Title |
Provision of palliative and end-of-life care by paramedics in New Zealand communities: a review of international practice and the New Zealand context |
Type |
Journal Article |
| Year |
2019 |
Publication |
Whitireia Journal of Nursing, Health and Social Services |
Abbreviated Journal |
|
| Volume |
|
Issue |
26 |
Pages |
51-57 |
| Keywords |
End-of-life (EOL) care; Palliative care; Paramedic; Emergency services |
| Abstract |
Reviews the international literature on paramedic preparedness to provide palliative and EOL care in in the community, and applies it to the NZ context. Finds that paramedics would like improved education and better integration with traditional care providers, encompassing patients, family, whanau and carers. and that they stress the psychological, spiritual and cultural needs of their patients. |
| Call Number |
NZNO @ research @ |
Serial |
1634 |
| Permanent link to this record |
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| Author |
English, Wendy |
| Title |
The moments we meet : lived experiences of rapport for nurses, patients and families in palliative care |
Type |
Book Whole |
| Year |
2018 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
135 p. |
| Keywords |
Palliative care; Patients; Palliative care nursing; Connectedness; Person-centred care |
| Abstract |
Undertakes 12 in-depth interviews with nurses, patients and families about their experiences of rapport and inter-connectedness in the context of palliative care. By means of thematic analysis identifies major themes and associated emotions deriving from connectedness or disconnectedness. Links rapport and connection to holistic care. |
| Call Number |
NZNO @ research @ |
Serial |
1644 |
| Permanent link to this record |
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| Author |
McChesney, Ruth; McClunie-Trust, Patricia |
| Title |
Anticipatory prescribing in community palliative and end-of-life care: a realist review |
Type |
Journal Article |
| Year |
2021 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
|
| Volume |
12 |
Issue |
1 |
Pages |
32-43 |
| Keywords |
Anticipatory prescribing; End-of-life care; Palliative care; Interdisciplinary team; Community care |
| Abstract |
Argues that anticipatory prescribing and an interdisciplinary workforce could transform primary palliative care. Aims to identify the factors influencing such prescribing in palliative and end-of-life community care. Conducts a meta-synthesis of 7 primary research studies using a critical realist framework. Identifies expertise, teamwork and prioritisation as the factors influencing anitcipatory prescribing in end-of-life care. |
| Call Number |
NZNO @ research @ |
Serial |
1716 |
| Permanent link to this record |
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| Author |
Henry, Amy |
| Title |
Staying at home: A qualitative descriptive study on Pacific palliative health |
Type |
Book Whole |
| Year |
2020 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
137 p. |
| Keywords |
Palliative care; Pacific health; Community palliative care; Talanoa research methodology; Surveys |
| Abstract |
Develops an understanding of the experiences of, and barriers for Pacific peoples in Canterbury utilising palliative care services. Considers the strengths and enablers for Pacific peoples accessing palliative care services and how such services, including home based palliative care, could better serve this community. Undertakes interviews using a semi-structured question guide, with nine family members who had provided palliative care within the last three years. |
| Call Number |
NZNO @ research @ |
Serial |
1762 |
| Permanent link to this record |
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| Author |
McDonald, Christine |
| Title |
Working collaboratively in hospice and palliative care: Sharing time; a grounded theory |
Type |
Book Whole |
| Year |
2018 |
Publication |
|
Abbreviated Journal |
|
| Volume |
|
Issue |
|
Pages |
230 p. |
| Keywords |
Palliative care; Hospice care; Collaboration |
| Abstract |
Addresses the concerns of health professionals working collaboratively in palliative care. Conducts 25 interviews wit 23 participants to arrive at a theory of sharing time to explain the social process of collaboration while individually managing and maintaining their own areas of concern. Explains the concept of health professionals making time in their work days for and with each other to find common ground. |
| Call Number |
NZNO @ research @ |
Serial |
1784 |
| Permanent link to this record |
