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Author Adams-Smith, P.H.
Title An exploration of issues of primary health services for Taranaki Te Atiawa children based on the expectations and perceptions of their female caregivers Type
Year 2002 Publication Abbreviated Journal http://hdl.handle.net/10063/75
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Keywords Parents and caregivers; Primary health care; Access; Maori; Children
Abstract The intention of this research is, through collaborative discussion and selective conversations, to explore female caregivers' expectations and perceptions of primary health services for some Te Atiawa Maori children. The research process was developed in a partnership between the Maori women participants and the researcher. In addition, two local kuia actively participated in and supported the process. Emancipatory critical social theory underpinned and informed the project. Power relationships between the researcher and the participants can be overtly explored within this theoretical framework. In terms of this particular exploratory study, participatory research appeared to be applicable. The participants are female caregivers of Te Atiawa children. Data collection was done using group interactions and semi-structured interviews in the winter of the year 2000. A thematic analysis of the data was used, in which common themes were identified, compared and discussed. From the analysis of the data of the participants' conversations, key ideas were identified. The major findings have been identified within two main themes. These are: a concept of health is not the same for Pakeha as for Maori, and access issues are still problematic for the participants in this study. Many quotes from the interview participants are included in order to keep the focus of the project on the voices of the women interviewed. In terms of the significant contribution of this research, this study aims to allow voices of female caregivers of Te Atiawa Maori children to be heard. Individual and collaborative interactions offer insights into what is important to them in terms of Maori child health. Clearly, the primary health initiatives promoted by the New Zealand government are not reaching at least some of the people for whom they are intended. The research participants offered their ideas as to how these deficits could be remedied in their community.
Call Number NRSNZNO @ research @ Serial 1216
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Author Mockford, A.
Title An exploratory descriptive study of the needs of parents after their young child is discharged from hospital following an admission with an acute illness Type
Year 2008 Publication Abbreviated Journal ResearchArchive@Victoria
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Keywords Parents and caregivers; Health knowledge; Children; Maori; Pacific peoples
Abstract This study investigated issues surrounding the high numbers of preventable admissions of young children with acute illnesses, particularly amongst Maori and Pacific children. It focuses on what happens once these children are discharged. Its aims were to find out what the expressed needs of parents were, as they cared for their child, once home. Whilst there has been a small amount of international research undertaken in this area, there is little known about expressed parent need in the New Zealand context. This exploratory descriptive study involved parents of under five year old children, who had been admitted to a hospital, with one of five acute illnesses. Eighteen parents were surveyed over the telephone. This study found the parents expressed a need for reassurance and advice once home, and that they worried about their child getting sick again. It highlighted gaps in discharge planning and support. None of the parents had received a written discharge plan for their child. Only five parents had received either a contact number for advice or a referral back to their primary care provider. This study found that whilst some parents considered their discharge needs had been met, others considered that they had not. Four local discharge practice opportunities to support these families were recommended, these included, providing parents and caregivers with an individualised written discharge plan, giving a contact number for advice after discharge, offering a follow-up phone call in the first 48 hours, and ensuring that all children have a referral back to their primary health care provider. Areas for further research were highlighted, including the need for a larger study to explore and compare the needs of rural and urban parents, and Maori and Pacific parents.
Call Number NRSNZNO @ research @ Serial 1232
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Author Deo, Lalesh
Title Parental needs and nursing response following SUFE Surgery; An interpretive descriptive study Type Book Whole
Year 2021 Publication Abbreviated Journal
Volume Issue (down) Pages 141 p.
Keywords Slipped Upper Femoral Epiphysis (SUFE); Parents and Caregivers; Child health; Maori children; Pacific children; Paediatric nurses
Abstract Examines the experiences of parents and nurses in caring for a child following invasive Slipped Upper Femoral Epiphysis (SUFE) repair. Conducts semi-structured interviews with parents of five children, predominantly Māori or Pacific, who underwent SUFE repair, and five paediatric nurses caring for the children and their families in the hospital ward. Offers two perspectives of the journey for these parents following such an injury, from the child's hospitalisation to caring for these children once they are home. Presents and contrasts these perspectives, revealing insights into the parents' ongoing need for support, information and planning for care, and nurses' efforts to meet these needs. Presents implications for nursing practice.
Call Number NZNO @ research @ Serial 1741
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Author McKelvie, R.
Title Partnership in paediatric nursing: A descriptive exploration of the concept and its practice Type
Year 2001 Publication Abbreviated Journal
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Keywords Paediatric nursing; Parents and caregivers; Children; Relationships
Abstract A 50 point research project presented in partial fulfilment of the requirements for the degree of Master of Nursing at Massey University.
Call Number NRSNZNO @ research @ 484 Serial 471
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Author Campbell, K.
Title Experiences of rural women who have cared for their terminally ill partners Type Book Chapter
Year 2008 Publication Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) Abbreviated Journal Ministry of Health publications page
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Keywords Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing
Abstract This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role.
Call Number NRSNZNO @ research @ 776 Serial 760
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Author Crawford, R.
Title An exploration of nurses' understanding of parenting in hospital Type
Year 2000 Publication Abbreviated Journal Massey University Library
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Keywords Nurse-family relations; Children; Hospitals; Parents and caregivers
Abstract
Call Number NRSNZNO @ research @ 812 Serial 796
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Author Marlow, S.A.
Title A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting Type
Year 2007 Publication Abbreviated Journal Research Archive@Victoria
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Keywords Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities
Abstract This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research.
Call Number NRSNZNO @ research @ 1144 Serial 1129
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Author Murphy, S.E.E.
Title Through mothers' eyes: The lived experience of caring for a child who has undergone and recovered from a liver transplantation Type
Year 2008 Publication Abbreviated Journal ResearchArchive@Victoria
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Keywords Parents and caregivers; Paediatric nursing; Children; Surgery
Abstract Mothers, whose children had undergone a liver transplant more than one year ago at time of interview and whose children were outpatients of Starship Children's Hospital, were invited to participate in this research. A Heideggerian hermeneutic phenomenological approach, informed by the work of van Manen (1990) was used. Three mothers of children who had received a liver transplant were interviewed to reveal the meanings of the phenomenon – what is the meaning of lived experience of mothers in caring for their child who has undergone and recovered following liver transplantation? Little previous study regarding mothers' lived experience of caring for their child, who had recovered from a liver transplant, was found in the literature. The emerging themes were punctuated with stress being a consistent feature. Utilising Ruddick's (1983) concepts of maternal thinking, the emerging themes were merged within the three interests governing maternal practice; preservation, growth and acceptability. The absolute capacity for attentive love draws the experience together. An essential theme identified out of the analysis was the concept of survival relating to the unique features of liver transplantation and the consequences of liver rejection and failure. The findings contribute to the understanding of the phenomenon, emphasising the need for good support systems for families of children who have undergone transplantation; assistance in the establishment of maternal coping strategies and regular feedback on the children's progress acknowledging the role and care provided by mothers.
Call Number NRSNZNO @ research @ 1242 Serial 1227
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Author Trenberth, D.
Title New Zealand families' beliefs about what constitutes successful management of unsupervised childcare Type
Year 2008 Publication Abbreviated Journal ResearchArchive@Victoria
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Keywords Children; Parents and caregivers
Abstract This study explored what some New Zealand families believe constitutes the successful management of unsupervised childcare. It was designed to increase social understanding and practitioner knowledge of the issue by exploring families' beliefs, practices and perspectives. The researcher was concerned with the professional role nurses may play with this group of children. A qualitative descriptive approach was used to obtain a straight description of successful unsupervised childcare, using the everyday language of the participating families. Data was collected in semi structured interviews with five family groups, and subjected to content and thematic analysis. Findings suggest unsupervised childcare is both choice and solution, though parents are fearful of the legal and social consequences of using it. Context of the care is important, with the child's preference, community context and availability of adults through distal supervision critical components of its success. Trust between parent and child, the use of rules and boundaries to regulate child behaviour, the teaching of skills and strategies to build child competency, and parental support of children while unsupervised are identified by parents as factors linked to success. Parents identify increasing child independence and self responsibility as positive outcomes from the successful use of unsupervised childcare. This study has helped to identify positive factors resulting in good outcomes from which successful interventions could be developed, provides information that will be of particular interest to practitioners and policy makers, and provides a platform to launch larger studies into the issue of unsupervised children.
Call Number NRSNZNO @ research @ 1252 Serial 1237
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