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Lichfield, M. (1974). The paediatric nurse and the child in hospital. New Zealand Nursing Journal, 67(11).
Abstract: A paper intended to inform paediatric nurses and influence service policy and management, adapted from a presentation at an inservice education study day for nurses at Wellington Hospital. The paper grew out of the findings of a small research project undertaken by the author as part of nursing practice in a paediatric ward of Wellington Hospital. The observations of the stress in the experience of infants and parents and the ambiguities inherent in the relationships between parents and nurses were the basis for arguing for changes in nursing practice and ward management.
Keywords: Paediatric nursing; Nurse-family relations; Nurse managers
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Fischer, R., Roy, D. E., & Niven, E. (2014). Different folks, different strokes: becoming and being a sroke family. Kai Tiaki Nursing Research, 5(1), 5–11.
Abstract: Reports a study exploring family experiences of stroke during the first six months following a stroke. Performs a hermeneutic phenomenological study in which four participants from two Auckland families are interviewed in 2011 and 2012, at three time-intervals within the first six months post-stroke. Identifies three themes of the families' experiences: loss of a life once lived; navigation of an unfamiliar path; re-creation of a sense of normality. Stresses the importance of contact with the health-care team in facilitating the transition to post-stroke life.
Keywords: Stroke; Lived experience; Phenomenology; Family; Caregivers; Life change
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Norton, V. (2014). Don't wait until we are struggling: what patients and family caregivers tell us about using a syringe driver. Kai Tiaki Nursing Research, 5(1), 12–16.
Abstract: Undertakes a study to ascertain the experiences, perceptions and assumptions of patients and their family caregiver(s) about the use of a syringe driver in palliative care. Enrols hospice cancer patients who use syringe drivers to provide continuous delivery of drugs. Conducts interviews with 27 individuals: 12 patient/family caregiver pairs, and 3 caregivers. Uses thematic analysis to apply codes to data to reveal shared versus unique experiences.
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Gillmour, J., Huntington, A., & Robson, B. (2016). Oral Health Experiences of Maori with Dementia and Whanau perspectives – Oranga Waha Mo Nga Iwi Katoa. Nursing Praxis in New Zealand, 32(1).
Abstract: Reports a study of the oral health experiences and needs of Maori with dementia, and their whanau. Uses a descriptive qualitative research design to develop an in-depth understanding of oral health issues from the perspective of the people being interviewed. Talks to 17 whanau members and describes the four themes that emerge from the interviews. Suggests service improvements.
Keywords: Maori; Whanau/family; Nursing; Oral health
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Walker, L., Clendon, J., & Cheung, V. (2016). Family responsibilities of Asian nurses in New Zealand: implications for retention. Kai Tiaki Nursing Research, 7(1), 4–10.
Abstract: Explores the care-giving responsibilities of Asian NZNO member nurses for both children and elders, and the impact of these on their work, their nursing careers and their intention to remain as nurses in NZ. Takes a mixed-method approach using a group interview of 25 nurses and a survey of 562 nurses. Highlights impacts on nurses, revealing variable access to support, with implications for continuing education, career advancement and retention.
Keywords: Asian nurses; Family caregiving; Workforce retention
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Moke, K. (2019). Finding the balance: Family inclusive practice in adult community mental health. Master's thesis, University of Otago, Dunedin.
Abstract: Explores family-inclusive practice in Adult Community Mental Health in a District Health Board. Focuses on what adult community mental health nurses and clinical managers consider to be barriers and facilitators to family-inclusive practice. Explores community mental health nurses' and clinical managers' perspectives of family-inclusive practice through semi-structured interviews using a descriptive qualitative design.
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Roberts, C. (2007). The influence of nursing culture on family visiting in adult intensive care units. Ph.D. thesis, , .
Abstract: This dissertation considers the implications of the relationship between nurses and the patient's family, when family members visit intensive care units (ICUs) following the acute admission of a relative there. In particular it explores the issues of power and control, nurses might have in this setting, the culture that supports that, and the implications this has for practice in the New Zealand context. A comprehensive literature review on the perspective of nurses in relation to relatives visiting adult intensive care units was conducted. The author concludes that nurses modify policies related to visiting access for family members to suit themselves, and the needs of their patient. Nurses use a variety of tactics to maintain a position of power and control by looking out for themselves first, their patient second, and relatives third. The need of the patient and their families is not well understood by nurses, and nurses feel they have inadequate skills to cope with the needs and stresses of visiting relatives. The author suggests that for nurses to provide family focused care in ICU they must develop a therapeutic relationship with all concerned. ICU nursing culture affects nurses ability to focus on caring for their patients and their families. Nurses in ICU appear to need to maintain power and control over their environment but further research is needed to identify the current situation in New Zealand ICUs.
Keywords: Intensive care nursing; Nurse-family relations; Culture; Nursing
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Cleaver, H. (2005). Reflections on knowing, not knowing and being in palliative care nursing. Ph.D. thesis, , .
Abstract: The author notes that responses to questions from dying people and their families are as individual as each nurse, patient, family member, or situation. This is well recognised and an unspoken truth in palliative care practice. This paper explores the subjective nature of knowledge in palliative care generated through capturing moments of practice and subsequent reflections. This demonstrates how the author uses her model of care to open a space that enables the person and their family to find meaning from their experience and articulate what they need at the time. The author identifies her interest in the paradoxical reality of knowing and not knowing and describes how that paradox contributes to her role in supporting individuals' needs within their realities.
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Fahey, M. (2003). Family centred care in the newborn intensive care unit: Creating a supportive environment. Ph.D. thesis, , .
Abstract: The environment of the Newborn Intensive Care Unit (NICU) is a stressful one for families and is often designed to provide technical care for the infant rather than facilities that would enable and support parental and family participation in infant care. Furthermore, the author notes that the environment of the NICU emerged in literature as an obstacle to meaningful family involvement in care. However, she goes on to say that a philosophy of Family Centred Care in the NICU can offer a framework of care that supports family involvement in the infant's care and family presence in the NICU. It also promotes parental participation in decision-making for the infant and gives recognition to the importance of perspectives provided by the family. This dissertation explores the difficulties associated with the practice of Family Centred Care in the environment of the NICU. It offers recommendations for features of unit design that can promote Family Centred Care by supporting and sustaining the presence of families in the NICU and therefore facilitating their involvement in the care of their infant.
Keywords: Intensive care nursing; Infants; Nurse-family relations
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Hall, J. (2004). Building trust to work with a grounded theory study of paediatric acute care nurses work. Ph.D. thesis, , .
Abstract: Grounded theory methodology has guided the grounded theory methods used to explore the acute care paediatric nurses' perspective of what they do when a child has had a severe accident. The research was initiated from the experience of nursing children in the context of a rehabilitation centre and wondering how acute care nurses promoted a child's recovery after a severe unintentional injury. Many avenues were used to search international and New Zealand literature but the scarcity of literature related to what acute care paediatric nurses do was evident. Nursing children in the acute care ward after a severe accident is complex. It encompasses nursing the family when they are experiencing a crisis. It is critical that the acute care nurse monitors and ensures the child's physiological needs are met, and the nurse “works with” the child to maintain and advance medical stability. Nursing interactions are an important part of “working with”, communication is the essence of nursing. This research has focussed on the nurses' social processes whilst caring for the physical needs of the child and interacting with the family and multidisciplinary team when appropriate. An effective working-relationship with a nurse and family is founded on trust. Grounded theory methods supported the process of exploring the social processes of “building trust” whilst “working with” families in a vulnerable position. Nurses rely on rapport to be invited into a family's space to “work with” and support the re-establishment of the parenting role. The “stepping in and out” of an effective working-relationship with a family is reliant on trust. Nurses build trust by spending time to “be with”, using chat to get to know each other, involving and supporting the family to parent a “different” child and reassuring and giving realistic hope to help the child and parents cope with their changed future. A substantive theory of the concept of “building trust to work with” has been developed using grounded theory methods. The theory has been conceptualised using the perspective of seven registered nurses working in paediatric acute care wards that admit children who have had a severe traumatic accident.
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McClunie-Trust, P. (2000). Body boundaries and discursive practices in life threatening illness: Narratives of the self. Ph.D. thesis, , .
Abstract: This thesis tells a story from within and between the boundaries of my professional work as a nurse and my private life as the wife of a patient with life threatening illness. The events related in the thesis are told using a technique I have called writing back to myself, where my own journals and stories of the experience of living with life threatening illness provide data for analysis. The reader is invited to participate in these representations and to consider the potential for the skilful practice of nursing which may be read in the stories, and the analysis I have developed from them. I have developed the theoretical and methodological positionings for the thesis from the work of Foucault (1975,1979,1982,1988), Deleuze (1988), Ellis (1995), Richardson (1998) and other writers who utilise genealogical or narrative approaches. The analysis of my own stories in the thesis explores the philosophical and contextual positionings of the nurse as a knowledge worker through genealogies of practice and the specific intellectual work of the nurse. Local and contextual epistemologies are considered as ways of theorising nursing practice through personal knowledge, which is surfaced through the critical analysis of contextual positionings and the process of writing as inquiry.
Keywords: Nurse-family relations; Nursing; Ethics
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Rochford, N. M. (2004). As a nurse in the family: Three women's stories of what it means for a female nurse to be caregiver to a family member who is ill, elderly or with an enduring illness. Ph.D. thesis, , .
Abstract: In this research, three female registered nurses relived their experiences of being caregiver to a family member who was ill, elderly or had an enduring illness and explored whether they chose, or felt obligated, to assume the role of caregiver because they were nurses. This research was an exploratory descriptive study utilising narrative as inquiry and the method of story-telling. It is women-centered, taking into account the unpaid role of caregiving within families most often fulfilled by women. Four main themes were identified and renamed to highlight research findings – these were the culture of nursing, silence of the nurses, emotional cloudiness, and the natural role of the nurse. Through this study it is hoped that nurses will be more aware of the impact their caregiving roles have had on their lives. The importance in acknowledging the effects of caregiving, relevance of informing employers to promote supportiveness, implications for workforce development and recognising the loss of objectivity in caring when emotions are involved, are identified in this research. The author suggests that further indepth research about these concepts would be a valuable contribution to the nursing profession and ideas for future research have been identified.
Keywords: Nurse-family relations
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Campbell, K. (2004). Intertwining the role of partner and caregiver: A phenomenological study of the experiences of four New Zealand rural women who have cared for their terminally ill partners. Ph.D. thesis, , .
Abstract: The stories of the women who live and work in rural settings in New Zealand have begun to reveal unique contributions that they have made to their families and community. This research study evolved from a trend the researcher observed as a district nurse providing community palliative care in rural New Zealand; that the majority of carers of those who are terminally in home-settings are in fact women. This qualitative study aimed to explore through guided conversational interviews the experiences of four women who have cared for their terminally ill partners who have subsequently died. The study investigated if these women's experiences were comparable to that of other women in existing palliative care literature. This research project focused particularly on elucidating the women's experience of intertwining the role of partner and caregiver. Heidegger's hermeneutic philosophy informed the methodology because he focused on what it meant to 'be' rather than 'how we know what we know'. The project focused on the meanings the women made of this dual role in their lives. Women already in the role of partner were now faced with the added responsibility of caregiver to meet the complex needs of their loved one. Usually they had no training to prepare them for this experience. The study reveals ways in which the visiting palliative care nurse becomes very important to them. The women's own voices reveal the high level of respect for their partners and address the harsh realities, revealing poignant and striking concerns in their lives. These stories are shared with the intent of enriching nurses' and other health professionals' understanding of the women's experiences. The author notes that understanding these women's experience is not only a way of honouring these remarkable women but more widely it will inform and possibly transform practice through guideline and policy refinement.
Keywords: Rural nursing; Terminal care; Palliative care; Home care; Nurse-family relations
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Lynes, H. (2004). Partnership or collaboration? Exploring professional relationships between public health nurses and school staff in Otago, New Zealand. Ph.D. thesis, , .
Abstract: School staff are a conduit by which children and families can access the public health nursing service and the public health nurses can access children and their families. The author notes that, to benefit children, public health nurses need more than knowledge of health issues; they need to understand how to work well with staff from the education sector. A good professional relationship between public health nurses and school staff will therefore ultimately result in a benefit to children's health. This thesis reviews the literature using an interpretive lens to examine the position of public health nurses and schools. It argues that public health nurses need to access expertise from other sources besides nursing in order to develop and sustain the skills of relating professionally to staff from the education sector. It proposes collaboration as a model of public health nursing practice with school staff but recognises that further research on inter-sectorial collaboration is necessary.
Keywords: Public health; Nursing; Nurse-family relations; School nursing
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Woods, M. (2008). Parental resistance. Mobile and transitory discourses: A discursive analysis of parental resistance towards medical treatment for a seriously ill child. Ph.D. thesis, , .
Abstract: This qualitative thesis uses discourse analysis to examine parental resistance towards medical treatment of critically ill children. It is an investigation of the 'mobile and transitory' discourses at play in instances of resistance between parents, physicians and nurses within health care institutions, and an examination of the consequences of resistance through providing alternative ways of perceiving and therefore understanding these disagreements. The philosophical perspectives, methodology and methods used in this thesis are underpinned by selected ideas taken from the works of Michel Foucault and Pierre Bourdieu and supported by relevant literature in the fields of media, law, children, parenting, caring, serious childhood illness, medicine and nursing. It is argued that from an examination of interview based texts, parental resistance is an omnipresent but transitory occurrence that affects many of the interactions between the parents of seriously ill children and clinical staff. It is maintained that within these interactions, the seeds of this resistance are sown in both critical decision making situations and in everyday occurrences between doctors, nurses and parents within healthcare institutions. Contributing factors to parental resistance include the use of power games by staff, the language of medicine, forms of symbolic violence, the presence or absence of trust between parents and medical staff, the effects of medical habitus, and challenges to the parental role and identity. Overall, it is proposed in this thesis that parents who resist treatment for their seriously ill child are not exceptions to the normative patient-physician relationship.
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