| |
Records |
Links |
|
Author |
Hammond, S. |
|
| |
Title |
Parallel journeys: Perceptions of palliative care |
Type |
|
| |
Year |
2001 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords  |
Palliative care; Policy; Geriatric nursing |
|
| |
Abstract |
The delivery of palliative care within contemporary New Zealand society is discussed, in the light of the recent publication of The New Zealand Palliative Care Strategy (2001). The viewpoint taken is largely descriptive rather than prescriptive, being based on a literature survey of international research and academic theory, which is also informed by the author's professionally gained knowledge. Four different perspectives, comprising a mix of providers and recipients of care are investigated: those of central government planning; specialist palliative care units; aged-care complexes; and patients, family and whanau. As an area of healthcare which current demographic projections indicate will become increasingly significant, the provision of palliative care to residents of and patients within aged-care complexes receives special attention. A metaphor of “parallel travellers” on “parallel journeys” is used to provide a thematic basis to the paper. The lived experiences and perceptions of each group of “parallel travellers” are explored. Difficulties in defining and evaluating palliative care, the implications of main-streaming, the scope of palliative care provision, the educative role of specialist palliative care providers and the current focus on mechanistic outcome measures are discussed. It is contended that the values and goals, both explicit and implicit, of the four specified groups may not at present be sufficiently congruent to optimise the effective provision of palliative care from the point of view of all concerned. While adequate resourcing and a genuinely collaborative approach among healthcare providers are both acknowledged to be critical, the potential for palliative care nurse practitioners to be appointed to the role of “care co-ordinator” alluded to within The New Zealand Palliative Care Strategy (2001), is also seen as pivotal. Insights from a postmodern perspective are offered as one possible way of achieving greater congruence. |
|
| |
Call Number |
NRSNZNO @ research @ |
Serial |
1215 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
English, Wendy |
|
| |
Title |
The moments we meet : lived experiences of rapport for nurses, patients and families in palliative care |
Type |
Book Whole |
| |
Year |
2018 |
Publication |
|
Abbreviated Journal |
|
|
| |
Volume |
|
Issue |
|
Pages |
135 p. |
|
| |
Keywords |
Palliative care; Patients; Palliative care nursing; Connectedness; Person-centred care |
|
| |
Abstract |
Undertakes 12 in-depth interviews with nurses, patients and families about their experiences of rapport and inter-connectedness in the context of palliative care. By means of thematic analysis identifies major themes and associated emotions deriving from connectedness or disconnectedness. Links rapport and connection to holistic care. |
|
| |
Call Number |
NZNO @ research @ |
Serial |
1644 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Campbell, K. |
|
| |
Title |
Experiences of rural women who have cared for their terminally ill partners |
Type |
Book Chapter |
| |
Year |
2008 |
Publication |
Jean Ross (Ed.), Rural nursing: Aspects of practice (pp. 166-178) |
Abbreviated Journal |
Ministry of Health publications page |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Parents and caregivers; Nurse-family relations; Gender; Community health nursing |
|
| |
Abstract |
This chapter firstly offers background information in relation to palliative care and the role of women as providers of care in the home setting. Secondly, it discusses a study that evolved from a trend the author observed as a district nurse providing community palliative care in rural New Zealand and from New Zealand literature; that the majority of carers of the terminally ill in home-settings are women. The aim of this research study was to offer insights into the requirements of caring for a dying person at home and provide information to assist nurses working in the community and other women who take on the caregiver's role. |
|
| |
Call Number |
NRSNZNO @ research @ 776 |
Serial |
760 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Henry, Amy |
|
| |
Title |
Staying at home: A qualitative descriptive study on Pacific palliative health |
Type |
Book Whole |
| |
Year |
2020 |
Publication |
|
Abbreviated Journal |
|
|
| |
Volume |
|
Issue |
|
Pages |
137 p. |
|
| |
Keywords |
Palliative care; Pacific health; Community palliative care; Talanoa research methodology; Surveys |
|
| |
Abstract |
Develops an understanding of the experiences of, and barriers for Pacific peoples in Canterbury utilising palliative care services. Considers the strengths and enablers for Pacific peoples accessing palliative care services and how such services, including home based palliative care, could better serve this community. Undertakes interviews using a semi-structured question guide, with nine family members who had provided palliative care within the last three years. |
|
| |
Call Number |
NZNO @ research @ |
Serial |
1762 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Meldrum, L.B.B. |
|
| |
Title |
Navigating the final journey: Dying in residential aged care in Aotearoa New Zealand |
Type |
|
| |
Year |
2006 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Older people; Rest homes |
|
| |
Abstract |
New Zealand statistics project that the aging population of people aged 65 years and over will more than double in the next decade. This has implications for palliative care providers including hospices and hospitals because long-term inpatient care is not generally provided by hospitals and hospices. When dying patients need long-term care, residential settings become an option. The level of palliative care in these facilities is dependent on staff training and numbers. In general, staff are not trained in palliative care, neither do they provide the multidisciplinary facets that define palliative care as undertaken by hospices. This paper describes a practice development initiative using storytelling as the vehicle for introducing the concept of the Liverpool Care Pathway (LCP) for the dying patient into residential aged care settings. With the emergence of a reflective paradigm in nursing the concept of storytelling as a teaching/learning tool has grown. Many staff in residential care settings come from diverse ethnic backgrounds where for some, English is their second language. Storytelling therefore can be a useful approach for learning because it can increase their communication skills. The author suggests that the Liverpool Care Pathway for the dying patient is a model that can be translated across care settings, hospice, hospital, and community. It can demonstrate a framework that facilitates multiprofessional communication and documentation and embraces local needs, culture and language to empower health care workers to deliver high quality care to dying patients and their family/whanau and carers. This paper also explores the role of a facilitator as an agent of change and discusses how the interplay of evidence, context and facilitation can result in the successful implementation of the LCP into residential aged care settings. |
|
| |
Call Number |
NRSNZNO @ research @ |
Serial |
683 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Cleaver, H. |
|
| |
Title |
Reflections on knowing, not knowing and being in palliative care nursing |
Type |
|
| |
Year |
2005 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Nursing; Terminal care; Nurse-family relations; Nurse-patient relations |
|
| |
Abstract |
The author notes that responses to questions from dying people and their families are as individual as each nurse, patient, family member, or situation. This is well recognised and an unspoken truth in palliative care practice. This paper explores the subjective nature of knowledge in palliative care generated through capturing moments of practice and subsequent reflections. This demonstrates how the author uses her model of care to open a space that enables the person and their family to find meaning from their experience and articulate what they need at the time. The author identifies her interest in the paradoxical reality of knowing and not knowing and describes how that paradox contributes to her role in supporting individuals' needs within their realities. |
|
| |
Call Number |
NRSNZNO @ research @ |
Serial |
511 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Hall, K.A. |
|
| |
Title |
Soothing sounds: An investigation into the value of music in palliative care |
Type |
|
| |
Year |
2003 |
Publication |
|
Abbreviated Journal |
ResearchArchive@Victoria |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Nursing; Qualiltative research; Alternative therapies |
|
| |
Abstract |
This qualitative study focuses on van Manen's theory of the 'lived experience' in relation to two families and asks the first thesis question. What is the value of music in the care of someone who is dying? Over the course of their loved one's illness these families provided music in the patients home as part of their care. The study also captures the experiences of two nurses who work in the palliative setting, and their use of music in providing holistic care to their patients. Their experiences relate to the second question. How can nurses be assisted in introducing music into their planned care of patients? The results demonstrate the effectiveness of using taped music for someone who is dying, and the reduction in symptoms, such as anxiety, and pain. It also highlights the importance of the individual's choice, and the special moments that can be achieved for both patient and families when music is used in a caring, supportive environment. This encourages communication, especially in the sharing of emotions. This study may be the first qualitative study in New Zealand, that addresses the value of music in palliative care, therefore there is a need for continued research into this therapy as a treatment modality as part of planned care in palliative nursing. |
|
| |
Call Number |
NRSNZNO @ research @ 1216 |
Serial |
1201 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Cavanagh, C. |
|
| |
Title |
Dignity and palliative care: A search to discover the true meaning of the concept of “dying with dignity” |
Type |
|
| |
Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Nursing; Case studies; Nurse-patient relations; Terminal care |
|
| |
Abstract |
This paper presents an exploration of a foundational goal of palliative care nursing which is to help patients die with dignity. The paper presents this practice exploration as a journey to gain understanding of the concept of dignity; the author notes that it does not avoid the difficulties encountered in practice situations because dying with dignity is unique and curiously also invisible and different for everyone. Much of human life is conducted through stories and much of nursing involves telling and listening to stories. Many of our social institutions are comprised almost entirely of opportunities for telling and retelling stories. Nurses are constantly listening to patients telling them what is going on in their lives and because of this the stories related here are written bold and raw. The three stories explore and reveal in-depth details of nursing practice that evolved and changed after reflection. The paper also reveals and explores the untold and often painful stories that challenge nurses' capacity to offer dignified care. To deepen the exploration towards discovering ways to articulate the complexity of dignity, the author reflected on the nature of the practice changes documented in the stories and then used a range of diverse literature and her love of the paintings and philosophy of a New Zealander, Ralph Hotere, to support her ideas that dignity is indeed a complex phenomenon. |
|
| |
Call Number |
NRSNZNO @ research @ |
Serial |
595 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Falleni, P.M. |
|
| |
Title |
Whakaata ikei runga manaaki: Reflection on caring |
Type |
Journal Article |
| |
Year |
2004 |
Publication |
International Journal of Palliative Nursing |
Abbreviated Journal |
|
|
| |
Volume |
10 |
Issue |
8 |
Pages |
390-392 |
|
| |
Keywords |
Palliative care; Nursing |
|
| |
Abstract |
|
|
| |
Call Number |
NRSNZNO @ research @ 1073 |
Serial |
1058 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Sheward, K.A. |
|
| |
Title |
Exploring the juxtaposition of end of life care in the acute setting and the integrated care pathway for the care of the dying |
Type |
|
| |
Year |
2005 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Hospitals; Communication; Nurse-patient relations |
|
| |
Abstract |
The primary aim of this research paper is to draw on the literature to offer some insight into end of life care in the acute hospital setting. The secondary purpose is to provide an understanding of the integrated clinical pathway (ICP) for the care of the dying, consider its influence related to some of the challenges shaping end of life care and the positive effect it can generate on the quality of care experienced. There are significant challenges that impact on both the delivery and receipt of care for dying patients and their families. Six key influential barriers are considered within the context of the acute setting. Communication and the acute environment are two areas that significantly impact on the quality of care delivered, and are explored in more depth. Narratives from nursing and medical staff convey the realities encountered and difficulties experienced when they are unable to provide the care to which they aspire. Stories are shared by patients and families, which reflect on their experience of end of life care in the acute setting, and offer heath professionals some insight into the lives of the people nurses care for. The literature in relation to the development and implementation of the Liverpool Care of the Dying Pathway, and an overview of the Pathway document is presented. The strengths and limitations of its use are considered, alongside its influence beyond the documentation of clinical care. It is not possible to transfer the hospice service into the hospital setting, however the author suggests that through the implementation of the clinical pathway there is an opportunity to transfer best practice guidelines and positively influence the palliative culture in the acute setting. |
|
| |
Call Number |
NRSNZNO @ research @ |
Serial |
772 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Carter, H.; McKinlay, E.M.; Scott, I.; Wise, D.; MacLeod, R. |
|
| |
Title |
Impact of a hospital palliative care service: Perspective of the hospital staff |
Type |
Journal Article |
| |
Year |
2002 |
Publication |
JBI Reports |
Abbreviated Journal |
|
|
| |
Volume |
18 |
Issue |
3 |
Pages |
160-167 |
|
| |
Keywords |
Palliative care; Hospitals; Attitude of health personnel; Cancer |
|
| |
Abstract |
The first New Zealand hospital palliative care support service was established in 1985. Different service models have now been adopted by various major hospitals. In 1998, a palliative care service, funded by Mary Potter Hospice, was piloted at Wellington Public Hospital. Twelve months post-implementation, the hospital staff's views of the service were evaluated. It was found that referrals to palliative care from hospital specialities outside the Cancer Centre increased. While most doctors, nurses and social workers strongly agreed or agreed that the service positively influenced patients' care and effectively addressed their symptom management needs, spiritual needs were less often met. Over 90 percent of each discipline strongly agreed or agreed that the service had assisted them in caring for patients, but, only about a half agreed that useful discharge planning advice and staff support was provided. Significant differences in responses were found between different disciplines and specialities. One fifth of the staff identified palliative care education needs. Recommendations are made concerning the development of a future hospital palliative care service. |
|
| |
Call Number |
NRSNZNO @ research @ |
Serial |
1075 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
McDonald, Christine |
|
| |
Title |
Working collaboratively in hospice and palliative care: Sharing time; a grounded theory |
Type |
Book Whole |
| |
Year |
2018 |
Publication |
|
Abbreviated Journal |
|
|
| |
Volume |
|
Issue |
|
Pages |
230 p. |
|
| |
Keywords |
Palliative care; Hospice care; Collaboration |
|
| |
Abstract |
Addresses the concerns of health professionals working collaboratively in palliative care. Conducts 25 interviews wit 23 participants to arrive at a theory of sharing time to explain the social process of collaboration while individually managing and maintaining their own areas of concern. Explains the concept of health professionals making time in their work days for and with each other to find common ground. |
|
| |
Call Number |
NZNO @ research @ |
Serial |
1784 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Bray, Y.M. |
|
| |
Title |
A migrant family's experience of palliative nursing care |
Type |
|
| |
Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; Cultural safety; Asian peoples; Nurse-patient relations |
|
| |
Abstract |
The focus of this research was to explore the migrant family's experience in palliative care. In writing this thesis, the author notes that it became evident that cultural safety was a connection that warranted further study in relation to end-of-life nursing care as was illustrated by the intergenerational case study of this migrant family in New Zealand. The use of the case study method of qualitative research enabled the voice of the migrant to be heard and the story of the migrant family's experience to be showcased. The uniqueness of this family's palliative care experience was around the religious and cultural needs and migration as a process of transition from a previous society to a new one. Palliative care was defined by the family approach with strong community support and empowered by culturally safe and appropriate nursing practice. End-of-life illness is a time when cultural perspectives are challenged for patients and their families and religious and cultural practices take on a new priority, regardless of how they have lived life previously. As a migrant nurse living and working in the New Zealand context, the author identifies as an important factor, the nurse-patient interaction as an encounter between two cultural perspectives, the patient's and the nurse as bearer of her own culture. Acknowledging this factor is an important step in developing a culturally safe approach to practice, an approach that proved to be a major ingredient in planning and caring for this patient and his family in end-of-life illness. This study and thesis explores the underpinnings of culturally safe palliative nursing care and identified 'reflexive bracketing' as a useful practice in the process. |
|
| |
Call Number |
NRSNZNO @ research @ 846 |
Serial |
830 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
McClunie-Trust, P |
|
| |
Title |
Negotiating Boundaries: The Nurse Family Member Caring for Her Own Relative in Palliative Care |
Type |
|
| |
Year |
2010 |
Publication |
|
Abbreviated Journal |
Victoria University Library |
|
| |
Volume |
|
Issue |
|
Pages |
|
|
| |
Keywords |
Palliative care; boundaries; patient-family relations |
|
| |
Abstract |
This research illuminates the challenges of living well within one's own family as a nurse caring for her own relative who is dying of a cancer-related illness. Developing a deeper awareness of the consequences of this caring work has been the central focus for inquiry in this research. Nursing requires epistemologies that encompass new ways of understanding how we live within our own families and communities and practice as nurses. The theoretical framework that guides this research interprets the French Philosopher Michel Foucault's (1926-1984) critical history of thought as an ethical project for nursing. It uses conceptual tools developed in his later writing and interviews to draw attention to how discursive knowledge and practices constitute subjectivity in relations of truth, power and the self's relation to the self. The first aspect of the analysis, landscapes of care examines the techniques of discourse as relations of power and knowledge that constitute nurse family members as subjects who have relationships with their own families and other health professionals. The second aspect analyses care of the self and others as self work undertaken to form the self as a particular kind of subject and achieve mastery over one's thoughts and actions.As an exploration of the complex and contradictory subjectivities of the nurse family member, this research illuminates the forms and limits of nursing practice knowledge. It shows how nursing is practised, and the identity of the nurse is created, through intellectual, political and relational work, undertaken on the self in relation to others, as modes of ethical engagement. |
|
| |
Call Number |
NZNO @ research @ |
Serial |
1350 |
|
| Permanent link to this record |
| |
|
| |
|
Author |
Nolan, M.; Featherston, J.; Nolan, J. |
|
| |
Title |
Palliative care: Palliative care philosophy in care homes: Lessons from New Zealand |
Type |
Journal Article |
| |
Year |
2003 |
Publication |
British Journal of Nursing |
Abbreviated Journal |
|
|
| |
Volume |
12 |
Issue |
16 |
Pages |
974-979 |
|
| |
Keywords |
Palliative care; Attitude of health personnel |
|
| |
Abstract |
Drawing on data from a large convenience sample of caregivers in New Zealand, this article argues for a reappraisal of the way in which care homes view death and dying and advocates the more widespread adoption of a palliative care philosophy. Increasing numbers of people are dying in care homes yet little is known about the nature and quality of their deaths. The limited research available suggests that there is a need to promote a philosophy of palliative care that is not confined to the terminal phase of life. However, adopting such an approach appears to be inhibited by a lack of understanding, education and training, as well as continuing reluctance to discuss issues of death and dying in an open and honest way. |
|
| |
Call Number |
NRSNZNO @ research @ 1081 |
Serial |
1066 |
|
| Permanent link to this record |
