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Author |
Boyd, M.E. |
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Title  |
Advancing nursing knowledge: The experience of a nurse working with dying people in a highly remote rural area |
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Year |
2005 |
Publication |
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Abbreviated Journal |
Otago Polytechnic library. A copy can be obtained by contacting pgnursadmin@tekotago.ac.nz |
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Pages |
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Keywords |
Terminal care; Rural nursing; Rural health services |
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Abstract |
By describing and gaining insight into one rural nurse's experience working with dying people in a highly, remote rural area, this project seeks to advance nursing practice. Key findings indicate that, through community partnership and teamwork, nurses can act to assist rural people by: increasing public awareness of health resources; exposing barriers to access; and identifying different health service needs. The author makes a case that some rural nurses may feel insufficiently prepared for rural nursing. To understand death and dying, key ideas from Kuebler-Ross's (1969) framework for dying are examined: denial, fear of dying, spirituality, hope, depression and how to die well. Nurses require a blend of end-of-life and rural nursing postgraduate education and skills, to manage well. Key findings imply that dying people can be helped by: improving function and independence to promote autonomy; encouraging faith, hope, and love within the person's personal concept of spirituality; listening to dying people, to oneself, to one's own reactions, and knowing oneself. Parse's theory (1981) indicates nurses can help rural dying people by the following key factors: encouraging the person to live life to the full while dying; accepting humans cannot be separated from their perspectives, circumstances or environments; focusing on quality of life from the person's perspective: encouraging the person to live life fully while dying; and offering new possibilities. The author goes on to say that Parse's human-universe-health process aids nurses to live their beliefs indicating Parse's theory could guide and advance nursing practice. |
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Call Number |
NRSNZNO @ research @ |
Serial |
573 |
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Author |
Marlow, S.A. |
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Title |
A voyage of grief and beauty: A phenomenological study of the experience of supporting a family member with an intellectual disability who is dying in a community setting |
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Year |
2007 |
Publication |
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Abbreviated Journal |
Research Archive@Victoria |
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Keywords |
Nurse-family relations; Terminal care; Parents and caregivers; People with disabilities |
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Abstract |
This thesis reports on a research project which explored the phenomenon of supporting a family member with an intellectual disability who is dying in a community setting. The research purpose was to enhance professional understanding of what it is like to encounter this lived experience. Literature back-grounding the phenomenon and philosophical and theoretical constructs embraced by the researcher are outlined. An explanation is given of the hermeneutic phenomenological methodology which was utilised. The main method of collecting research data was through conducting five open-ended interviews with participants who had supported a dying child or sibling. The participants' family members were aged between 3 and 52 years old at the time of their deaths. Their specific intellectual disabilities included Down syndrome, a metabolically induced disorder and a non-identified syndrome. The family members had died from a variety of terminal illnesses and in a range of community settings. Interpretive analysis was achieved through reflexive journaling and hermeneutic intuiting of interview transcripts and field notes. The research findings have been subjected to rhetorical consideration in the light of further literature and poetic texts. Research findings are expressed metaphorically as groups of boulders representing themes and sub-themes. Three major themes were revealed as having impacted on the river voyage shared by participants and their dying family members. These were Interlocked Companionship, Search for New Balance and Permeable Interaction. An assessment is offered of the strengths and weaknesses of the research project. The thesis concludes with recommendations for reflective practice, evidence based practice, service development and areas of future research. |
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Call Number |
NRSNZNO @ research @ 1144 |
Serial |
1129 |
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Author |
Bickley, J. |
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Title |
A study of medical, nursing, and institutional not-for-resuscitation (NFR) discourses |
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Year |
2002 |
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Abbreviated Journal |
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Pages |
317 pp |
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Keywords |
Clinical decision making; Attitude of health personnel; Hospitals; Terminal care |
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Abstract |
This study investigates the way that medical, nursing and institutional discourses construct knowledge in the specific context of Not-for-resuscitation (NFR)in a New Zealand general hospital where NFR guidelines are available in the wards and from the regional ethics committee. The thesis argues that there are ranges of techniques that staff use to construct NFR knowledge, enacted through various forms of speech and silence, which result in orderly and disorderly experiences for patients nearing death. The study was conducted through a critical analysis of the talk of health professionals and the Chairperson of the Regional Ethics Committee. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1117 |
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Author |
Hill, N. |
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Title |
A shared revelation: A comparative, triangulated study on improving quality of life in the terminally ill |
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Year |
2001 |
Publication |
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Abbreviated Journal |
Massey University Library |
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Pages |
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Keywords |
Quality of life; Terminal care; Nursing |
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Abstract |
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Call Number |
NRSNZNO @ research @ 793 |
Serial |
777 |
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Author |
Martin, M. |
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Title |
A grain of salt ...: A contemplative study of natural form in nursing, developed in collaboration with people in life-threatening and life-challenging situations to reveal untold stories of healing |
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Year |
2000 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Terminal care; Nurse-patient relations |
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Abstract |
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Call Number |
NRSNZNO @ research @ |
Serial |
1267 |
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