| Records |
| Author |
Cavanagh, C. |
| Title |
Dignity and palliative care: A search to discover the true meaning of the concept of “dying with dignity” |
Type  |
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| Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Palliative care; Nursing; Case studies; Nurse-patient relations; Terminal care |
| Abstract |
This paper presents an exploration of a foundational goal of palliative care nursing which is to help patients die with dignity. The paper presents this practice exploration as a journey to gain understanding of the concept of dignity; the author notes that it does not avoid the difficulties encountered in practice situations because dying with dignity is unique and curiously also invisible and different for everyone. Much of human life is conducted through stories and much of nursing involves telling and listening to stories. Many of our social institutions are comprised almost entirely of opportunities for telling and retelling stories. Nurses are constantly listening to patients telling them what is going on in their lives and because of this the stories related here are written bold and raw. The three stories explore and reveal in-depth details of nursing practice that evolved and changed after reflection. The paper also reveals and explores the untold and often painful stories that challenge nurses' capacity to offer dignified care. To deepen the exploration towards discovering ways to articulate the complexity of dignity, the author reflected on the nature of the practice changes documented in the stories and then used a range of diverse literature and her love of the paintings and philosophy of a New Zealander, Ralph Hotere, to support her ideas that dignity is indeed a complex phenomenon. |
| Call Number |
NRSNZNO @ research @ |
Serial |
595 |
| Permanent link to this record |
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| Author |
Maries, V.J. |
| Title |
Chosen moments: A reflective journey illustrating terminally ill patients choosing the moment to die |
Type |
|
| Year |
2004 |
Publication |
|
Abbreviated Journal |
Victoria University of Wellington Library |
| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Terminal care; Palliative care; Nurse-patient relations |
| Abstract |
In this project the author reveals how she is observing and thinking as she cares for people who are dying. She records her reflections and insights and reveals that there is life right up to the moment of death, having observed terminally ill patients choosing the precise moment to die. She describes her observations of these moments by using poetry and stories, and explores the implications for her practice as a result. The author presents her reflections using an individualistic, reflective and exploratory perspective which is informed by the work of nursing scholars. This paper is framed using the metaphors of a journey and a window to indicate the reflective process that the author used to journal her observations in practice over time. |
| Call Number |
NRSNZNO @ research @ |
Serial |
773 |
| Permanent link to this record |
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| Author |
Carter, H.; MacLeod, R.; Brander, P.; McPherson, K. |
| Title |
Living with a terminal illness: Patients' priorities |
Type |
Journal Article |
| Year |
2004 |
Publication |
Journal of Advanced Nursing |
Abbreviated Journal |
|
| Volume |
45 |
Issue |
6 |
Pages |
611-620 |
| Keywords |
Terminal care; Quality of life; Nursing models; Cancer |
| Abstract |
The aim of this paper is to report on an exploratory, qualitative study exploring what people living with terminal illness considered were the areas of priority in their lives. Ten people living with terminal cancer were interviewed. Analysis of the interviews incorporated principles of narrative analysis and grounded theory. Over 30 categories were identified and collated into five inter-related themes (personal/intrinsic factors, external/extrinsic factors, future issues, perceptions of normality and taking charge) encompassing the issues of importance to all participants. Each theme focused on 'life and living' in relation to life as it was or would be without illness. Practical issues of daily living and the opportunity to address philosophical issues around the meaning of life emerged as important areas. The central theme, 'taking charge', concerned with people's levels of life engagement, was integrally connected to all other themes. The findings suggest that the way in which health professionals manage patients' involvement in matters such as symptom relief can impact on existential areas of concern. The findings challenge some aspects of traditional 'expert-defined' outcome measures. As this was an exploratory study, further work is needed to test and develop the model presented. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1061 |
| Permanent link to this record |
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| Author |
Polaschek, N. |
| Title |
Living on dialysis: Concerns of clients in a renal setting |
Type |
Journal Article |
| Year |
2003 |
Publication |
Journal of Advanced Nursing |
Abbreviated Journal |
|
| Volume |
41 |
Issue |
1 |
Pages |
44-52 |
| Keywords |
Nurse-patient relations; Psychology; Attitude to health; Terminal care |
| Abstract |
This article reports a study that sought to understand the experience of a group of Caucasian men with end stage renal failure managing their own haemodialysis therapy in their homes. The study used a critical interpretive methodology. The renal setting was critically viewed as a specialised health care context constituted by several interrelated discourses. Although established by the dominant professional discourse, it also includes a number of others, in particular an obscure client discourse that is a response to the dominant discourse. Initially, participants' own interpretations of their individual experiences were outlined. These were then collectively reinterpreted by contextualising them in terms of the critical view of the renal setting, in order to discern their own views as renal clients that were obscured by the language and ideas of the dominant discourse with which they had been enculturated. From an analysis of the set of accounts derived from interviews with six participants, four concerns of the renal client discourse were identified. These concerns were: (1) suffering from continuing symptoms of end stage renal failure and dialysis; (2) limitations resulting from negotiating dialysis into their lifestyle; (3) ongoingness and uncertainty of life on dialysis; and (4) altered relationship between autonomy and dependence inherent in living on dialysis. One specific implication of this study is that the distinctive potential of the nursing role in renal settings lies beyond the performance of a range of technical tasks, in addressing the experience of people living on dialysis, described here as the concerns of the renal client discourse. |
| Call Number |
NRSNZNO @ research @ |
Serial |
1072 |
| Permanent link to this record |
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| Author |
Latta, L. |
| Title |
Reflective storytelling to enhance learning from practice experience |
Type |
Book Chapter |
| Year |
2005 |
Publication |
J. McDrury (Ed.), Nursing matters: A reader for teaching and learning in the clinical setting (pp.67-82). |
Abbreviated Journal |
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| Volume |
|
Issue |
|
Pages |
|
| Keywords |
Terminal care; Palliative care; Teaching methods; Nursing |
| Abstract |
The author looks at the value of using reflective storytelling as a teaching/learning tool in the hospice setting and examines constructs that provide a theoretical underpinning. She also outlines processes that support the implementation of storytelling practice and the creation of a safe space for storytelling. At the end of the chapter, discussion questions are provided by Janice McDrury. |
| Call Number |
NRSNZNO @ research @ |
Serial |
767 |
| Permanent link to this record |
