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Author |
Maries, V.J. |
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Title |
Chosen moments: A reflective journey illustrating terminally ill patients choosing the moment to die |
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Year |
2004 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Terminal care; Palliative care; Nurse-patient relations |
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Abstract |
In this project the author reveals how she is observing and thinking as she cares for people who are dying. She records her reflections and insights and reveals that there is life right up to the moment of death, having observed terminally ill patients choosing the precise moment to die. She describes her observations of these moments by using poetry and stories, and explores the implications for her practice as a result. The author presents her reflections using an individualistic, reflective and exploratory perspective which is informed by the work of nursing scholars. This paper is framed using the metaphors of a journey and a window to indicate the reflective process that the author used to journal her observations in practice over time. |
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Call Number |
NRSNZNO @ research @ |
Serial |
773 |
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Author |
Archer, L.K. |
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Title |
We talk what we do: An exploration of the value, role and function of storytelling in nursing from one nurse's practice perspective |
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Year |
2001 |
Publication |
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Abbreviated Journal |
Victoria University of Wellington Library |
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Issue |
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Pages |
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Keywords |
Nursing; Palliative care; Professional development |
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Abstract |
The role of storytelling in any society fulfils multiple functions such as maintaining culture, holding history, teaching genealogical lessons, imparting wisdom, entertaining, passing on knowledge. The author suggests that nursing, historically described as a craft with an oral tradition, could be seen to be quietly moving away from the practice of storytelling. Or has it? She asked this question and began to realise that her practice and relationships with colleagues had always been based on stories and storying. To explore this phenomenon, she began to describe her day to day practice in story form, and began to position stories she had previously written. In her work of oncology palliative care nursing within a community setting in New Zealand, the stories proved crucial to her role as an educator, and companion of patients and their families. In this paper she examines how she uses story for her benefit, the patients' benefit, but mainly for the benefit of nursing. She examines from her own perspective, some underlying themes that reinforce the need to continue this ancient tradition and explore the role, value and function of storytelling within nursing. |
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Call Number |
NRSNZNO @ research @ |
Serial |
788 |
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Author |
McClunie-Trust, P |
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Title |
Negotiating Boundaries: The Nurse Family Member Caring for Her Own Relative in Palliative Care |
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Year |
2010 |
Publication |
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Abbreviated Journal |
Victoria University Library |
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Volume |
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Issue |
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Pages |
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Keywords |
Palliative care; boundaries; patient-family relations |
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Abstract |
This research illuminates the challenges of living well within one's own family as a nurse caring for her own relative who is dying of a cancer-related illness. Developing a deeper awareness of the consequences of this caring work has been the central focus for inquiry in this research. Nursing requires epistemologies that encompass new ways of understanding how we live within our own families and communities and practice as nurses. The theoretical framework that guides this research interprets the French Philosopher Michel Foucault's (1926-1984) critical history of thought as an ethical project for nursing. It uses conceptual tools developed in his later writing and interviews to draw attention to how discursive knowledge and practices constitute subjectivity in relations of truth, power and the self's relation to the self. The first aspect of the analysis, landscapes of care examines the techniques of discourse as relations of power and knowledge that constitute nurse family members as subjects who have relationships with their own families and other health professionals. The second aspect analyses care of the self and others as self work undertaken to form the self as a particular kind of subject and achieve mastery over one's thoughts and actions.As an exploration of the complex and contradictory subjectivities of the nurse family member, this research illuminates the forms and limits of nursing practice knowledge. It shows how nursing is practised, and the identity of the nurse is created, through intellectual, political and relational work, undertaken on the self in relation to others, as modes of ethical engagement. |
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Call Number |
NZNO @ research @ |
Serial |
1350 |
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Author |
White, G.E.; Su, H.-R. |
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Title |
Am I dying, nurse? |
Type |
Journal Article |
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Year |
2000 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
15 |
Issue |
1 |
Pages |
33-40 |
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Keywords |
Communication; Ethics; Nursing; Palliative care |
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Abstract |
This paper addresses the concept of truth, and debates who should tell it and how it should be told. It explores the cultural aspects of knowing the truth about dying. The question of whether nurses have a moral obligation to tell the truth is explored, and suggests the lack of New Zealand research in this area should be addressed. |
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Call Number |
NRSNZNO @ research @ |
Serial |
631 |
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Author |
Falleni, P.M. |
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Title |
Whakaata ikei runga manaaki: Reflection on caring |
Type |
Journal Article |
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Year |
2004 |
Publication |
International Journal of Palliative Nursing |
Abbreviated Journal |
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Volume |
10 |
Issue |
8 |
Pages |
390-392 |
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Keywords |
Palliative care; Nursing |
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Abstract |
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Call Number |
NRSNZNO @ research @ 1073 |
Serial |
1058 |
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Author |
Nolan, M.; Featherston, J.; Nolan, J. |
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Title |
Palliative care: Palliative care philosophy in care homes: Lessons from New Zealand |
Type |
Journal Article |
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Year |
2003 |
Publication |
British Journal of Nursing |
Abbreviated Journal |
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Volume |
12 |
Issue |
16 |
Pages |
974-979 |
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Keywords |
Palliative care; Attitude of health personnel |
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Abstract |
Drawing on data from a large convenience sample of caregivers in New Zealand, this article argues for a reappraisal of the way in which care homes view death and dying and advocates the more widespread adoption of a palliative care philosophy. Increasing numbers of people are dying in care homes yet little is known about the nature and quality of their deaths. The limited research available suggests that there is a need to promote a philosophy of palliative care that is not confined to the terminal phase of life. However, adopting such an approach appears to be inhibited by a lack of understanding, education and training, as well as continuing reluctance to discuss issues of death and dying in an open and honest way. |
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Call Number |
NRSNZNO @ research @ 1081 |
Serial |
1066 |
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Author |
Carter, H.; McKinlay, E.M.; Scott, I.; Wise, D.; MacLeod, R. |
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Title |
Impact of a hospital palliative care service: Perspective of the hospital staff |
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Journal Article |
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Year |
2002 |
Publication |
JBI Reports |
Abbreviated Journal |
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Volume |
18 |
Issue |
3 |
Pages |
160-167 |
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Keywords |
Palliative care; Hospitals; Attitude of health personnel; Cancer |
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Abstract |
The first New Zealand hospital palliative care support service was established in 1985. Different service models have now been adopted by various major hospitals. In 1998, a palliative care service, funded by Mary Potter Hospice, was piloted at Wellington Public Hospital. Twelve months post-implementation, the hospital staff's views of the service were evaluated. It was found that referrals to palliative care from hospital specialities outside the Cancer Centre increased. While most doctors, nurses and social workers strongly agreed or agreed that the service positively influenced patients' care and effectively addressed their symptom management needs, spiritual needs were less often met. Over 90 percent of each discipline strongly agreed or agreed that the service had assisted them in caring for patients, but, only about a half agreed that useful discharge planning advice and staff support was provided. Significant differences in responses were found between different disciplines and specialities. One fifth of the staff identified palliative care education needs. Recommendations are made concerning the development of a future hospital palliative care service. |
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Call Number |
NRSNZNO @ research @ |
Serial |
1075 |
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Author |
Norton, V. |
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Title |
Don't wait until we are struggling: what patients and family caregivers tell us about using a syringe driver |
Type |
Journal Article |
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Year |
2014 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
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Volume |
5 |
Issue |
1 |
Pages |
12-16 |
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Keywords |
Patients and family caregiver; Syringe driver; Palliative care; Symptom management |
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Abstract |
Undertakes a study to ascertain the experiences, perceptions and assumptions of patients and their family caregiver(s) about the use of a syringe driver in palliative care. Enrols hospice cancer patients who use syringe drivers to provide continuous delivery of drugs. Conducts interviews with 27 individuals: 12 patient/family caregiver pairs, and 3 caregivers. Uses thematic analysis to apply codes to data to reveal shared versus unique experiences. |
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Call Number |
NZNO @ research @ |
Serial |
1399 |
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Author |
Smit, Charmaine |
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Title |
Making self-care a priority |
Type |
Journal Article |
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Year |
2017 |
Publication |
Whitireia Nursing and Health Journal |
Abbreviated Journal |
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Volume |
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Issue |
24 |
Pages |
29-35 |
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Keywords |
Self-care; Compassion fatigue; Burn-out; Compassion; Palliative care |
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Abstract |
Highlights the importance of prioritising self-care for palliative care nurses whose prolonged exposure to work-related stress may result in burn-out. Recommends a self-care plan that addresses individual strengths and challenges, including physical, emotional, cognitive, relational and spiritual. Suggests the use of self-care strategies, such as the identification of professional and personal strengths, and the application of mindfulness and stress-reduction techniques to improve self-awareness. |
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Call Number |
NZNO @ research @ |
Serial |
1548 |
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Author |
Rodgers, Vivien; Marshall, Bridget; Hey, Frances; Blackwell, Anna; Lewer, Pip |
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Title |
Readiness for providing primary palliative care |
Type |
Journal Article |
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Year |
2017 |
Publication |
Nursing Praxis in New Zealand |
Abbreviated Journal |
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Volume |
33 |
Issue |
3 |
Pages |
P. 31-40 |
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Keywords |
Primary palliative care; Aged residential care; SEQUAL |
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Abstract |
Undertakes a pilot study by specialist Supportive Education and Quality (SEQUAL) palliative care team in 5 aged residential care (ARC) facilities in regional NZ. Conducts a clinical staff survey and facility desktop document review to determine readiness, need for and level of support required, to enhance primary palliative care for residents. Identifies lack of experience and palliative care education among clinical staff. |
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Call Number |
NZNO @ research @ |
Serial |
1589 |
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Author |
McCormick, Glen; Thompson, Sean R |
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Title |
Provision of palliative and end-of-life care by paramedics in New Zealand communities: a review of international practice and the New Zealand context |
Type |
Journal Article |
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Year |
2019 |
Publication |
Whitireia Journal of Nursing, Health and Social Services |
Abbreviated Journal |
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Volume |
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Issue |
26 |
Pages |
51-57 |
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Keywords |
End-of-life (EOL) care; Palliative care; Paramedic; Emergency services |
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Abstract |
Reviews the international literature on paramedic preparedness to provide palliative and EOL care in in the community, and applies it to the NZ context. Finds that paramedics would like improved education and better integration with traditional care providers, encompassing patients, family, whanau and carers. and that they stress the psychological, spiritual and cultural needs of their patients. |
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Call Number |
NZNO @ research @ |
Serial |
1634 |
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Author |
McChesney, Ruth; McClunie-Trust, Patricia |
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Title |
Anticipatory prescribing in community palliative and end-of-life care: a realist review |
Type |
Journal Article |
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Year |
2021 |
Publication |
Kai Tiaki Nursing Research |
Abbreviated Journal |
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Volume |
12 |
Issue |
1 |
Pages |
32-43 |
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Keywords |
Anticipatory prescribing; End-of-life care; Palliative care; Interdisciplinary team; Community care |
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Abstract |
Argues that anticipatory prescribing and an interdisciplinary workforce could transform primary palliative care. Aims to identify the factors influencing such prescribing in palliative and end-of-life community care. Conducts a meta-synthesis of 7 primary research studies using a critical realist framework. Identifies expertise, teamwork and prioritisation as the factors influencing anitcipatory prescribing in end-of-life care. |
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Call Number |
NZNO @ research @ |
Serial |
1716 |
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Author |
English, Wendy |
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Title |
The moments we meet : lived experiences of rapport for nurses, patients and families in palliative care |
Type |
Book Whole |
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Year |
2018 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
135 p. |
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Keywords |
Palliative care; Patients; Palliative care nursing; Connectedness; Person-centred care |
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Abstract |
Undertakes 12 in-depth interviews with nurses, patients and families about their experiences of rapport and inter-connectedness in the context of palliative care. By means of thematic analysis identifies major themes and associated emotions deriving from connectedness or disconnectedness. Links rapport and connection to holistic care. |
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Call Number |
NZNO @ research @ |
Serial |
1644 |
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Author |
Henry, Amy |
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Title |
Staying at home: A qualitative descriptive study on Pacific palliative health |
Type |
Book Whole |
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Year |
2020 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
137 p. |
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Keywords |
Palliative care; Pacific health; Community palliative care; Talanoa research methodology; Surveys |
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Abstract |
Develops an understanding of the experiences of, and barriers for Pacific peoples in Canterbury utilising palliative care services. Considers the strengths and enablers for Pacific peoples accessing palliative care services and how such services, including home based palliative care, could better serve this community. Undertakes interviews using a semi-structured question guide, with nine family members who had provided palliative care within the last three years. |
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Call Number |
NZNO @ research @ |
Serial |
1762 |
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Author |
McDonald, Christine |
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Title |
Working collaboratively in hospice and palliative care: Sharing time; a grounded theory |
Type |
Book Whole |
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Year |
2018 |
Publication |
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Abbreviated Journal |
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Volume |
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Issue |
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Pages |
230 p. |
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Keywords |
Palliative care; Hospice care; Collaboration |
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Abstract |
Addresses the concerns of health professionals working collaboratively in palliative care. Conducts 25 interviews wit 23 participants to arrive at a theory of sharing time to explain the social process of collaboration while individually managing and maintaining their own areas of concern. Explains the concept of health professionals making time in their work days for and with each other to find common ground. |
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Call Number |
NZNO @ research @ |
Serial |
1784 |
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